Our 3rd annual Through the Decades Dance Party for ALS One will be held on Saturday, October 1 at the Middleboro Elks! Tickets are on sale now and can be purchased here. We raised close to $15,000 at last year's event, and we hope to surpass that this year! As always, 100% of the proceeds… Continue reading Through the Decades Dance Party: A Fundraiser for ALS ONE
I haven't physically been to clinic at Mass General in a year, thanks to COVID. Last April and July I had virtual visits with Dr. Berry via Zoom. In September and December a nurse from the ALS House Call program came out to the house for an in-person visit. She came out for her third… Continue reading ALS House Call Visit
Today’s clinic was a little different. Since we are in the middle of the COVID-19 pandemic, clinic was held via video conference. Obviously that meant no lung function test, no strength and range of motion tests, etc. Basically we just went over how everything is going and if I felt there had been any significant… Continue reading April Clinic
I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic
Rise Against ALS! 