On September 18th we hosted our RISE AGAINST ALS Decades Dance Party for ALS ONE at the Middleboro Elks. It was a wonderful night full of music and dancing and so many laughs! Over 120 people came together for an amazing cause and we raised more than $11,000 to support ALS ONE's mission! The best… Continue reading Oh What a Night! RISE AGAINST ALS Decades Dance Party for ALS ONE
I haven't physically been to clinic at Mass General in a year, thanks to COVID. Last April and July I had virtual visits with Dr. Berry via Zoom. In September and December a nurse from the ALS House Call program came out to the house for an in-person visit. She came out for her third… Continue reading ALS House Call Visit
I don't dwell on abilities I once had that I no longer have thanks to ALS. But there are certainly times I mourn the loss of things I was once able to do with ease that I've now lost. One of the things I miss most in the world is practicing Martial Arts. I walked… Continue reading The One with All the Karate
Today’s clinic was a little different. Since we are in the middle of the COVID-19 pandemic, clinic was held via video conference. Obviously that meant no lung function test, no strength and range of motion tests, etc. Basically we just went over how everything is going and if I felt there had been any significant… Continue reading April Clinic
I turned 48 on Friday! Last night Aaron and I went to Twin River with Alana, Diane and Eric, Cheryl and Dave, James and Deb, and Sri, who was home for a short break from Ohio where he is in the second year of his medical residency. It was such a fun night! The band… Continue reading Birthday Shenanigans
We lost our friend and fellow ALS warrior Al this week. I am profoundly sad. I didn’t know Al well, but I was really looking forward to getting to know him and his wife better this summer.
I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic
Last week Aaron and Jack and I packed up the car and headed off to Kentucky for my cousin Ashley’s wedding. My aunt Kathy, cousin Kerri, and goddaughter Piper also made the trip from MA and we had an amazing time! The wedding was beautiful, and we had a fantastic time catching up with family… Continue reading Road Trip
Aaron and I went into Fenway last night with Diane and Eric to see the Piano Man himself, Billy Joel. It was, of course, an amazing concert. But I did have a fair amount of difficulty physically, which was frustrating. Because Fenway is not the roomiest of places to see a concert, I only brought… Continue reading Piano Man
Last night Aaron and I along with our friends Cheryl and Dave, attended John Mitchell's Summer Bash in Boston benefiting ALS ONE and the Greg Hill Foundation. We had a great time catching up with friends and even got to meet a particular favorite of mine, Lenny Clarke. And Wally, mascot to my beloved Red… Continue reading Summer Bash
Rise Against ALS! 