I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic
Last week Aaron and Jack and I packed up the car and headed off to Kentucky for my cousin Ashley’s wedding. My aunt Kathy, cousin Kerri, and goddaughter Piper also made the trip from MA and we had an amazing time! The wedding was beautiful, and we had a fantastic time catching up with family… Continue reading Road Trip
We had a great time at the Tucker Toss Cornhole Tournament this afternoon. This event is put on by the friends of Tucker Wood, an amazing 36-year-old man diagnosed with ALS 3 years ago. Tucker and his wife Lauren are part of our ALS ONE family and we love seeing them at these events. I… Continue reading Tucker Toss
Aaron and I went into Fenway last night with Diane and Eric to see the Piano Man himself, Billy Joel. It was, of course, an amazing concert. But I did have a fair amount of difficulty physically, which was frustrating. Because Fenway is not the roomiest of places to see a concert, I only brought… Continue reading Piano Man
Last night Aaron and I along with our friends Cheryl and Dave, attended John Mitchell's Summer Bash in Boston benefiting ALS ONE and the Greg Hill Foundation. We had a great time catching up with friends and even got to meet a particular favorite of mine, Lenny Clarke. And Wally, mascot to my beloved Red… Continue reading Summer Bash
The girls and I went to dinner tonight. We go to dinner fairly often together, but tonight we had the first planning meeting for the fundraiser we are planning to host in October to raise funds for ALS ONE. My family and I became involved with ALS ONE almost a year ago and they have… Continue reading Girls on a Mission
**[ED. Note: I created a page for this post so I could update it regularly without having to scroll through old posts. See the top menu bar or click here for the updated version] **I turned 47 on March 6th. I don’t shy away from my age, I don’t get sad about it, or lie… Continue reading 50 Before 50
We participated in Boston Walk to Defeat ALS last weekend. It was a great time. A little chilly, but so much fun.
For the second year in a row, my cousins and I have planned a weekend getaway in NH. My husband, my son, and I are joined by several of my cousins and their families and we have a blast. It's two days of fun, laughter, and love. This year's trip came one month after my… Continue reading #Strength
Rise Against ALS! 