#strength, ALS, ALS One, Friends and Family, MGH

Through the Decades Dance Party: A Fundraiser for ALS ONE

Our 3rd annual Through the Decades Dance Party for ALS One will be held on Saturday, October 1 at the Middleboro Elks! Tickets are on sale now and can be purchased here. We raised close to $15,000 at last year's event, and we hope to surpass that this year! As always, 100% of the proceeds… Continue reading Through the Decades Dance Party: A Fundraiser for ALS ONE

#strength, ALS One, Friends and Family, My Tribe, Uncategorized

Oh What a Night! RISE AGAINST ALS Decades Dance Party for ALS ONE

On September 18th we hosted our RISE AGAINST ALS Decades Dance Party for ALS ONE at the Middleboro Elks. It was a wonderful night full of music and dancing and so many laughs! Over 120 people came together for an amazing cause and we raised more than $11,000 to support ALS ONE's mission! The best… Continue reading Oh What a Night! RISE AGAINST ALS Decades Dance Party for ALS ONE

ALS, ALS One, Bucket List, Music, My Tribe

Lost in Love

Last night was amazing! Aaron, Bender, Deb, and I headed to the Cape for dinner and then onto the Cape Cod Melody Tent for the Air Supply concert. After the anguish of the previous week, I was sincerely doubting my ability to enjoy a concert, even one that I had looked forward to for so… Continue reading Lost in Love

#strength, ALS, ALS One

RED SOX ALS Awareness Game

Aaron, Jack, and I were honored to help represent ALS One at the Red Sox ALS Awareness Game last night. We joined four ALS organizations, 25 families affected by the disease, Mass. Governor Charlie Baker, and Dr. Merit Cudkowicz of the Healey Center for ALS at MGH, among others during the pregame ceremony. As a… Continue reading RED SOX ALS Awareness Game

#strength, ALS, ALS One, Cousins, General Hospital

Epic Weekend

It has taken me over a week to fully recover from the epic time that was had here at Casa de Strojny over the weekend of the 19th-21st. That had promised to be a great weekend anyway because Nancy Lee Grahn was hosting a Zoom fundraiser for ALS One, which I was super excited about.… Continue reading Epic Weekend

#strength, ALS, ALS One, General Hospital

General Hospital Stars Zoom for ALS

Back in the early-ish days of the pandemic, a pretty cool thing happened in the midst of the craziness. Because everything in the world was basically shut down, people got all inventive in terms of connecting with their fellow humans. Zoom calls became the norm. For me, Friday nights became Friends and Family Fridays. It… Continue reading General Hospital Stars Zoom for ALS

#strength, ALS, ALS One, Bucket List, My Tribe

At Play in the Fields of the Bored

I awoke from a fitful sleep sometime after 6:00 tonight and went outside for the first time in days. The cold was surprising and there was an ache in my lungs as I inhaled the painfully fresh air. I squinted hard against the sun, which was still high in the sky, though descending quickly, preparing… Continue reading At Play in the Fields of the Bored

#strength, ALS, ALS One, Friends and Family, My Tribe

Polar Plunge

Today was ALS ONE’s annual Polar Plunge in Marshfield. It was a frigid day for a frolic in the ocean, and I give props to all those brave enough to go in. This is always a fun event, and the after party was full of laughs and great music by my high school classmate Billy… Continue reading Polar Plunge

#strength, ALS, ALS One, Cousins, My Tribe

ALS One Snow Ball Gala

Last night was ALS ONE’s annual Snow Ball Gala. It was held this year at Lombardo’s in Randolph. I was sad that my parents couldn’t join us this year. My father is in the middle of chemotherapy for pancreatic cancer and we couldn’t take the chance of having him around a lot of people with… Continue reading ALS One Snow Ball Gala

ALS One, Friends and Family

Summer Bash

Last night Aaron and I along with our friends Cheryl and Dave, attended John Mitchell's Summer Bash in Boston benefiting ALS ONE and the Greg Hill Foundation. We had a great time catching up with friends and even got to meet a particular favorite of mine, Lenny Clarke. And Wally, mascot to my beloved Red… Continue reading Summer Bash