Uncategorized

The Future of Rise Against ALS

Dear Friends, Supporters, and Community Members, After four years of successful grassroots impact as an independent initiative, Rise Against ALS, Inc., proudly announces its official incorporation as a new nonprofit organization.  I founded Rise Against ALS as a branded initiative in 2021 to raise funds for ALS ONE, and since its inception, we have raised… Continue reading The Future of Rise Against ALS

Uncategorized

Daytime Unites to End ALS!

*It has been a hot minute since I updated this blog and there is a lot to catch up on. That will come later this week. For now, I couldn’t let this day go by without remembering where I was a year ago… One year ago today, Daytime United to End ALS! More than 30… Continue reading Daytime Unites to End ALS!

#strength, Family, Uncategorized

I Now Pronounce You…

I had the honor and absolute privilege of officiating the wedding of my sassy, funny AF “baby” cousin Kerri and her fiancé, my amazing, hot-shit new cousin Gus, the night before Thanksgiving. I love these two more than words can say. The ceremony was a success, and we celebrated that night as well as the… Continue reading I Now Pronounce You…

ALS One, Bucket List, Uncategorized

The One with Paul Wahlberg

On October 12, Chef Paul Wahlberg, came to our home and prepared an absolutely stunning six-course meal. We were joined by my besties, Alana (and her daughter, Hailey) and Cheryl, and by our dear friends Jen and Bob. Jen is the executive of ALS ONE and she helped facilitate this amazing night. The best part… Continue reading The One with Paul Wahlberg

#strength, ALS One, Friends and Family, My Tribe, Uncategorized

Oh What a Night! RISE AGAINST ALS Decades Dance Party for ALS ONE

On September 18th we hosted our RISE AGAINST ALS Decades Dance Party for ALS ONE at the Middleboro Elks. It was a wonderful night full of music and dancing and so many laughs! Over 120 people came together for an amazing cause and we raised more than $11,000 to support ALS ONE's mission! The best… Continue reading Oh What a Night! RISE AGAINST ALS Decades Dance Party for ALS ONE

Uncategorized

Our Mission

We started our Rise Against ALS initiative in early 2021 with an eye toward advocacy and awareness, and with the specific mission of raising funds for ALS ONE and the Healey Center for ALS at Massachusetts General Hospital through various fundraisers throughout the year. Stay tuned for upcoming events and new merch. Thank you for… Continue reading Our Mission

#strength, Uncategorized

I Did a Thing…

I needed a little color in my life. Between being locked down forever and the suck-fest that is winter in New England, I felt like I needed to spice things up a bit. So at 48 years old, I decided a pop of color was just what the doctor ordered. I love it...and it mortified… Continue reading I Did a Thing…

Bucket List, Cousins, My Tribe, NKOTB, Uncategorized

NKOT(Son of a)B; but first, Wahlburgers!

To ring in 2019, we hosted a big family New Year's slumber party weekend. My cousin Lauren and her daughters came down from Maine, so it was the perfect opportunity to get the family together. I think it was the first time we all celebrated New Years together, at least as far as I can… Continue reading NKOT(Son of a)B; but first, Wahlburgers!

Star Wars, Uncategorized

Yeah, I May Owe Rian Johnson an Apology

I saw Star Wars: The Force Awakens the day it came out in December 2015. I’d been waiting decades for this movie. Yes, we had the prequels, but like all bad memories I repressed the hell out of those. The Force Awakens was the movie Gen X fans needed to restore our faith. I sat… Continue reading Yeah, I May Owe Rian Johnson an Apology

#strength, ALS, karate, Uncategorized

The Diagnosis

It started with pain on the inside of my ankle. A little pain in my ankle at 40-something years old after 30-plus years of practicing martial arts was not surprising, and certainly not particularly worrisome. I’ve had strains and sprains and bruises many times over the years. I’ve broken fingers and ribs and collar bones,… Continue reading The Diagnosis