Category: #strength

#strength, ALS

Rollin’ Rollin’ Rollin’

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My ATP delivered my power wheelchair today. It came a lot sooner than I expected. I don’t have a ramp yet, or an accessible car. Those things will come soon enough. For now it will stay in the garage and I will take out as I need it around the neighborhood. I’ll have more to… Continue reading Rollin’ Rollin’ Rollin’

#strength, ALS, Friends and Family, My Tribe

Birthday Shenanigans

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I turned 48 on Friday! Last night Aaron and I went to Twin River with Alana, Diane and Eric, Cheryl and Dave, James and Deb, and Sri, who was home for a short break from Ohio where he is in the second year of his medical residency. It was such a fun night! The band… Continue reading Birthday Shenanigans

#strength, ALS, ALS One, Friends and Family, My Tribe

Polar Plunge

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Today was ALS ONE’s annual Polar Plunge in Marshfield. It was a frigid day for a frolic in the ocean, and I give props to all those brave enough to go in. This is always a fun event, and the after party was full of laughs and great music by my high school classmate Billy… Continue reading Polar Plunge

#strength, ALS, My Tribe

Wheelchair Clinic

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Diane took me to Spaulding rehab today for my wheelchair clinic appointment. I was pretty nervous going in. I had no idea what to expect. I was quickly put at ease by Debra, the physical therapist, and Steve, the assistive technology professional (ATP). They took some measurements, checked my balance and strength and all that… Continue reading Wheelchair Clinic

#strength, ALS, ALS One, Cousins, My Tribe

ALS One Snow Ball Gala

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Last night was ALS ONE’s annual Snow Ball Gala. It was held this year at Lombardo’s in Randolph. I was sad that my parents couldn’t join us this year. My father is in the middle of chemotherapy for pancreatic cancer and we couldn’t take the chance of having him around a lot of people with… Continue reading ALS One Snow Ball Gala

#strength, ALS, MGH

ALS Clinic

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I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic

#strength, ALS, ALS One

Tucker Toss

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We had a great time at the Tucker Toss Cornhole Tournament this afternoon. This event is put on by the friends of Tucker Wood, an amazing 36-year-old man diagnosed with ALS 3 years ago. Tucker and his wife Lauren are part of our ALS ONE family and we love seeing them at these events. I… Continue reading Tucker Toss

#strength, Bucket List, Cousins, Friends and Family, My Tribe

So This Happened…

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Scratch another one off my bucket list! Actually, this may scratch off a couple. Back in April I wrote about my adventures in getting tickets to NKOTB. After a misstep or two, I managed to get tickets for my cousins Lauren and Kerri, my friend Cheryl, and myself. Last night we headed into Boston for… Continue reading So This Happened…

#strength, ALS, Cousins, My Tribe

#Strength

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For the second year in a row, my cousins and I have planned a weekend getaway in NH. My husband, my son, and I are joined by several of my cousins and their families and we have a blast. It's two days of fun, laughter, and love. This year's trip came one month after my… Continue reading #Strength