Last summer, Aaron and our friends Bender and Eric started messing around playing some music together, and before we knew it they formed a band. We and the Benders would switch off hosting duties each weekend and we'd spend our days lounging by our respective pools for a few hours before the guys would disappear… Continue reading Worth the Wait!
It was so great to get down to Marshfield yesterday for ALS One's annual polar plunge! After more than a year of lockdown and COVID restrictions and isolation, people were so ready for this. It was freeeeezing cold, but so awesome to see everyone and cheer on those who braved the frigid waters of the… Continue reading ALS One Polar Plunge 2021
It has taken me over a week to fully recover from the epic time that was had here at Casa de Strojny over the weekend of the 19th-21st. That had promised to be a great weekend anyway because Nancy Lee Grahn was hosting a Zoom fundraiser for ALS One, which I was super excited about.… Continue reading Epic Weekend
Back in the early-ish days of the pandemic, a pretty cool thing happened in the midst of the craziness. Because everything in the world was basically shut down, people got all inventive in terms of connecting with their fellow humans. Zoom calls became the norm. For me, Friday nights became Friends and Family Fridays. It… Continue reading General Hospital Stars Zoom for ALS
I needed a little color in my life. Between being locked down forever and the suck-fest that is winter in New England, I felt like I needed to spice things up a bit. So at 48 years old, I decided a pop of color was just what the doctor ordered. I love it...and it mortified… Continue reading I Did a Thing…
The pandemic has been looming over us since March. The end of spring and start of summer were very restricted and we couldn't do much of anything beyond our houses and neighborhoods. Though I will say that my neighborhood is the best, and we rocked the socially distanced driveway fire pits for months, which at… Continue reading Cousin Time
I awoke from a fitful sleep sometime after 6:00 tonight and went outside for the first time in days. The cold was surprising and there was an ache in my lungs as I inhaled the painfully fresh air. I squinted hard against the sun, which was still high in the sky, though descending quickly, preparing… Continue reading At Play in the Fields of the Bored
I don't dwell on abilities I once had that I no longer have thanks to ALS. But there are certainly times I mourn the loss of things I was once able to do with ease that I've now lost. One of the things I miss most in the world is practicing Martial Arts. I walked… Continue reading The One with All the Karate
Today’s clinic was a little different. Since we are in the middle of the COVID-19 pandemic, clinic was held via video conference. Obviously that meant no lung function test, no strength and range of motion tests, etc. Basically we just went over how everything is going and if I felt there had been any significant… Continue reading April Clinic
Today was a big day. I got a stair lift installed from our foyer up to the second floor where our bedroom is. Stairs have been the bane of my existence for a while. I’ve had more falls on stairs than anywhere and since I prefer to sleep in my bedroom rather than on the… Continue reading One Small Step…
Rise Against ALS! 