Our 3rd annual Through the Decades Dance Party for ALS One will be held on Saturday, October 1 at the Middleboro Elks! Tickets are on sale now and can be purchased here. We raised close to $15,000 at last year's event, and we hope to surpass that this year! As always, 100% of the proceeds… Continue reading Through the Decades Dance Party: A Fundraiser for ALS ONE
Kristen, the nurse from MGH’s ALS House Call program, came today for her trimonthly visit. All in all, it went pretty well. I don’t feel like I’ve had a lot of progression. My neck still causes me pain but we’re going to try a new brace that may help with that. My respiratory therapist had… Continue reading ALS House Call Visit
I'm really terrible at making time to post here. It's one of the many things I'm working on. It's been a hot minute since my last post, and that one was a bit, um, melancholy. I realized upon reflection that I was spiraling just a tad, and that it was time for a hard reset.… Continue reading Hard Reset
Pictures are worth a thousand words. These capture perfectly the determination and strength of everyone in the ALS ONE community.
Friday night was ALS ONE's 7th annual Snow Ball. It was so great to be able to gather in person and see so many friends after the long isolation of Covid. The evening, as always, was informative, emotional, and inspirational. Lots of laughter, a few tears, and a fair amount of wine. We celebrated the… Continue reading 2022 ALS ONE GALA
A couple of nights ago Aaron and I went to BJs to do some shopping. Big Saturday night out! On the way home, he seemed to have taken a detour. Being geographically challenged, I didn't really notice that we weren't going in a direction that would lead us to our house. Soon enough we were… Continue reading Super Nifty…Look Who’s 50!
On September 18th we hosted our RISE AGAINST ALS Decades Dance Party for ALS ONE at the Middleboro Elks. It was a wonderful night full of music and dancing and so many laughs! Over 120 people came together for an amazing cause and we raised more than $11,000 to support ALS ONE's mission! The best… Continue reading Oh What a Night! RISE AGAINST ALS Decades Dance Party for ALS ONE
Ghosts That We Knew When life hands you lemons, make lemonade. It’s a great little saying, and for the most part I try to abide by it. I believe the premise, certainly. I think we should try to find joy when and where we can. Life can be difficult, and while we can’t control a… Continue reading Life Throws Lemons…
My cousins came down from Maine for 5 days last week and we made the most of every moment. Of course, with Mike here the band commandeered the garage and had multiple days of band practice. They put on quite a show for the neighbors, and fortunately all the feedback we got was positive and… Continue reading Mini Concert Weekend
Aaron, Jack, and I were honored to help represent ALS One at the Red Sox ALS Awareness Game last night. We joined four ALS organizations, 25 families affected by the disease, Mass. Governor Charlie Baker, and Dr. Merit Cudkowicz of the Healey Center for ALS at MGH, among others during the pregame ceremony. As a… Continue reading RED SOX ALS Awareness Game
Rise Against ALS! 