We had our third annual Rise Against ALS Decades Dance Party fundraiser on October 1st at the Middleboro Elks, and it was awesome! With over 100 people in attendance, we raised nearly $14,000 to support ALS ONE's mission. A huge thank you to all who came out and/or donated. A couple of weeks later we… Continue reading Rise Against ALS Decades Dance Fundraiser
Below are some of the amazing raffles that you'll find at our 3rd annual Rise Against ALS Decades Dance Party on Saturday, October 1 at the Middleboro Elks! Visit our Facebook Event Page for more information and to purchase tickets or make a donation, or simply use the QR Code to the left. Get your… Continue reading Rise Against ALS Decades Dance Party Raffle Spotlights
Our 3rd annual Through the Decades Dance Party for ALS One will be held on Saturday, October 1 at the Middleboro Elks! Tickets are on sale now and can be purchased here. We raised close to $15,000 at last year's event, and we hope to surpass that this year! As always, 100% of the proceeds… Continue reading Through the Decades Dance Party: A Fundraiser for ALS ONE
Kristen, the nurse from MGH’s ALS House Call program, came today for her trimonthly visit. All in all, it went pretty well. I don’t feel like I’ve had a lot of progression. My neck still causes me pain but we’re going to try a new brace that may help with that. My respiratory therapist had… Continue reading ALS House Call Visit
I haven't physically been to clinic at Mass General in a year, thanks to COVID. Last April and July I had virtual visits with Dr. Berry via Zoom. In September and December a nurse from the ALS House Call program came out to the house for an in-person visit. She came out for her third… Continue reading ALS House Call Visit
Today’s clinic was a little different. Since we are in the middle of the COVID-19 pandemic, clinic was held via video conference. Obviously that meant no lung function test, no strength and range of motion tests, etc. Basically we just went over how everything is going and if I felt there had been any significant… Continue reading April Clinic
I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic
Rise Against ALS! 