Today’s clinic was a little different. Since we are in the middle of the COVID-19 pandemic, clinic was held via video conference. Obviously that meant no lung function test, no strength and range of motion tests, etc. Basically we just went over how everything is going and if I felt there had been any significant… Continue reading April Clinic
Today was a big day. I got a stair lift installed from our foyer up to the second floor where our bedroom is. Stairs have been the bane of my existence for a while. I’ve had more falls on stairs than anywhere and since I prefer to sleep in my bedroom rather than on the… Continue reading One Small Step…
My ATP delivered my power wheelchair today. It came a lot sooner than I expected. I don’t have a ramp yet, or an accessible car. Those things will come soon enough. For now it will stay in the garage and I will take out as I need it around the neighborhood. I’ll have more to… Continue reading Rollin’ Rollin’ Rollin’
I turned 48 on Friday! Last night Aaron and I went to Twin River with Alana, Diane and Eric, Cheryl and Dave, James and Deb, and Sri, who was home for a short break from Ohio where he is in the second year of his medical residency. It was such a fun night! The band… Continue reading Birthday Shenanigans
We lost our friend and fellow ALS warrior Al this week. I am profoundly sad. I didn’t know Al well, but I was really looking forward to getting to know him and his wife better this summer.
Today was ALS ONE’s annual Polar Plunge in Marshfield. It was a frigid day for a frolic in the ocean, and I give props to all those brave enough to go in. This is always a fun event, and the after party was full of laughs and great music by my high school classmate Billy… Continue reading Polar Plunge
Diane took me to Spaulding rehab today for my wheelchair clinic appointment. I was pretty nervous going in. I had no idea what to expect. I was quickly put at ease by Debra, the physical therapist, and Steve, the assistive technology professional (ATP). They took some measurements, checked my balance and strength and all that… Continue reading Wheelchair Clinic
Last night was ALS ONE’s annual Snow Ball Gala. It was held this year at Lombardo’s in Randolph. I was sad that my parents couldn’t join us this year. My father is in the middle of chemotherapy for pancreatic cancer and we couldn’t take the chance of having him around a lot of people with… Continue reading ALS One Snow Ball Gala
I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic
We had a great time at the Tucker Toss Cornhole Tournament this afternoon. This event is put on by the friends of Tucker Wood, an amazing 36-year-old man diagnosed with ALS 3 years ago. Tucker and his wife Lauren are part of our ALS ONE family and we love seeing them at these events. I… Continue reading Tucker Toss
Rise Against ALS! 