Diane took me to Spaulding rehab today for my wheelchair clinic appointment. I was pretty nervous going in. I had no idea what to expect. I was quickly put at ease by Debra, the physical therapist, and Steve, the assistive technology professional (ATP). They took some measurements, checked my balance and strength and all that… Continue reading Wheelchair Clinic
Last night was ALS ONE’s annual Snow Ball Gala. It was held this year at Lombardo’s in Randolph. I was sad that my parents couldn’t join us this year. My father is in the middle of chemotherapy for pancreatic cancer and we couldn’t take the chance of having him around a lot of people with… Continue reading ALS One Snow Ball Gala
I go to the ALS clinic at Mass General every 3 months to meet with my neurologist and other members of the clinic team, including a nurse, physical therapist, speech and language pathologist, social worker, etc. I always feel very empowered when I leave my appointment. Everyone there is just so supportive and while I… Continue reading ALS Clinic
Last week Aaron and Jack and I packed up the car and headed off to Kentucky for my cousin Ashley’s wedding. My aunt Kathy, cousin Kerri, and goddaughter Piper also made the trip from MA and we had an amazing time! The wedding was beautiful, and we had a fantastic time catching up with family… Continue reading Road Trip
We had a great time at the Tucker Toss Cornhole Tournament this afternoon. This event is put on by the friends of Tucker Wood, an amazing 36-year-old man diagnosed with ALS 3 years ago. Tucker and his wife Lauren are part of our ALS ONE family and we love seeing them at these events. I… Continue reading Tucker Toss
Last night my Gang of 3 and I hosted an 80s Night fundraiser for ALS ONE. It was a great night and we raised over $5000, which we’re very happy about. We hope to make this an annual event! A huge thank you to everyone who helped put this together and to all who attended.… Continue reading 80s Night!
Aaron and I went into Fenway last night with Diane and Eric to see the Piano Man himself, Billy Joel. It was, of course, an amazing concert. But I did have a fair amount of difficulty physically, which was frustrating. Because Fenway is not the roomiest of places to see a concert, I only brought… Continue reading Piano Man
Last night Aaron and I along with our friends Cheryl and Dave, attended John Mitchell's Summer Bash in Boston benefiting ALS ONE and the Greg Hill Foundation. We had a great time catching up with friends and even got to meet a particular favorite of mine, Lenny Clarke. And Wally, mascot to my beloved Red… Continue reading Summer Bash
The girls and I went to dinner tonight. We go to dinner fairly often together, but tonight we had the first planning meeting for the fundraiser we are planning to host in October to raise funds for ALS ONE. My family and I became involved with ALS ONE almost a year ago and they have… Continue reading Girls on a Mission
Scratch another one off my bucket list! Actually, this may scratch off a couple. Back in April I wrote about my adventures in getting tickets to NKOTB. After a misstep or two, I managed to get tickets for my cousins Lauren and Kerri, my friend Cheryl, and myself. Last night we headed into Boston for… Continue reading So This Happened…
Rise Against ALS! 