The pandemic has been looming over us since March. The end of spring and start of summer were very restricted and we couldn't do much of anything beyond our houses and neighborhoods. Though I will say that my neighborhood is the best, and we rocked the socially distanced driveway fire pits for months, which at… Continue reading Cousin Time
Jack is officially a middle school graduate! His last day in school thanks to the pandemic was March 13. Since then everything has been online, and he has worked hard to round out his final year in middle school. The end of this year was supposed to be full of fun activities for him, culminating… Continue reading Middle School Grad!
I awoke from a fitful sleep sometime after 6:00 tonight and went outside for the first time in days. The cold was surprising and there was an ache in my lungs as I inhaled the painfully fresh air. I squinted hard against the sun, which was still high in the sky, though descending quickly, preparing… Continue reading At Play in the Fields of the Bored
I don't dwell on abilities I once had that I no longer have thanks to ALS. But there are certainly times I mourn the loss of things I was once able to do with ease that I've now lost. One of the things I miss most in the world is practicing Martial Arts. I walked… Continue reading The One with All the Karate
Today’s clinic was a little different. Since we are in the middle of the COVID-19 pandemic, clinic was held via video conference. Obviously that meant no lung function test, no strength and range of motion tests, etc. Basically we just went over how everything is going and if I felt there had been any significant… Continue reading April Clinic
Today was a big day. I got a stair lift installed from our foyer up to the second floor where our bedroom is. Stairs have been the bane of my existence for a while. I’ve had more falls on stairs than anywhere and since I prefer to sleep in my bedroom rather than on the… Continue reading One Small Step…
My ATP delivered my power wheelchair today. It came a lot sooner than I expected. I don’t have a ramp yet, or an accessible car. Those things will come soon enough. For now it will stay in the garage and I will take out as I need it around the neighborhood. I’ll have more to… Continue reading Rollin’ Rollin’ Rollin’
I turned 48 on Friday! Last night Aaron and I went to Twin River with Alana, Diane and Eric, Cheryl and Dave, James and Deb, and Sri, who was home for a short break from Ohio where he is in the second year of his medical residency. It was such a fun night! The band… Continue reading Birthday Shenanigans
We lost our friend and fellow ALS warrior Al this week. I am profoundly sad. I didn’t know Al well, but I was really looking forward to getting to know him and his wife better this summer.
Today was ALS ONE’s annual Polar Plunge in Marshfield. It was a frigid day for a frolic in the ocean, and I give props to all those brave enough to go in. This is always a fun event, and the after party was full of laughs and great music by my high school classmate Billy… Continue reading Polar Plunge
Rise Against ALS! 