Our 4th annual Rise Against ALS Through the Decades Dance Party for ALS One will be held on Saturday, September 30th at 7:00 at the Middleboro Elks! Tickets are on sale now and can be purchased here. As always, 100% of the proceeds go directly to ALS One to support critical ALS research and help… Continue reading Through the Decades Dance Party
Our 4th annual Rise Against ALS Through the Decades Dance Party for ALS One will be held on Saturday, September 30 at 7:00 PM at the Middleboro Elks! We have lots of amazing raffles and silent auction items, and DJ Mike Grondin will be back playing our favorite songs through the decades. And this year,… Continue reading Save the Date
In March, we attended ALS ONE's 8th Annual Snow Ball at the Marriott Quincy. This is one of my favorite nights of the year as we come together to celebrate the strides made in research and the tireless work of the entire ALS community. Last week we attended the annual Luau on the Links Golf… Continue reading ALS ONE Event Roundup, Part 2
I used to keep a notebook next to my bed every night. I’d sometimes wake with great urgency, ripped from the peace that sleep had rendered, knowing that writing down whatever thought or phrase or quote or scene that was brewing was the only chance I had of falling back asleep. And so, without turning… Continue reading Everything Was Beautiful and Nothing Hurt
A huge thank you to our dear friend Nancy Lee Grahn, who stars as Alexis Davis on ABC's General Hospital, for hosting the "A Little Seasonal Cheer for ALS Research & Care" event last night. Nancy was joined by her amazing GH costars and friends Genie Francis (Laura Webber Collins), Becky Herbst (Elizabeth Webber-Baldwin), Maura… Continue reading A Little Seasonal Cheer
I got the call late Friday night that we had lost another ALS warrior. That’s four in 2 years. I am so utterly exhausted from getting these calls and attending these wakes. I’m sad and angry and frustrated and just done with all the loss. No matter how much progress is made, we’re losing too… Continue reading I’ve Stepped off the Edge of the World
Aaron and I went out with friends last night to see an 80s band at a great place in Marshfield called Station Eight. We’d discovered this bar for the first time after a group of us from ALS One went there after the Tucker Toss. I loved it instantly because it was incredibly accessible and… Continue reading Don’t Pet the Crip: She Bites
Below are some of the amazing raffles that you'll find at our 3rd annual Rise Against ALS Decades Dance Party on Saturday, October 1 at the Middleboro Elks! Visit our Facebook Event Page for more information and to purchase tickets or make a donation, or simply use the QR Code to the left. Get your… Continue reading Rise Against ALS Decades Dance Party Raffle Spotlights
Our 3rd annual Through the Decades Dance Party for ALS One will be held on Saturday, October 1 at the Middleboro Elks! Tickets are on sale now and can be purchased here. We raised close to $15,000 at last year's event, and we hope to surpass that this year! As always, 100% of the proceeds… Continue reading Through the Decades Dance Party: A Fundraiser for ALS ONE
Kristen, the nurse from MGH’s ALS House Call program, came today for her trimonthly visit. All in all, it went pretty well. I don’t feel like I’ve had a lot of progression. My neck still causes me pain but we’re going to try a new brace that may help with that. My respiratory therapist had… Continue reading ALS House Call Visit
Rise Against ALS! 