The Future of Rise Against ALS
Dear Friends, Supporters, and Community Members, After four years of successful grassroots impact as an independent initiative, Rise Against ALS, Inc., proudly announces its official incorporation as a new nonprofit organization. I founded Rise Against ALS as a branded initiative in 2021 to raise funds for ALS ONE, and since its inception, we have raised…
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Daytime Unites to End ALS!
*It has been a hot minute since I updated this blog and there is a lot to catch up on. That will come later this week. For now, I couldn’t let this day go by without remembering where I was a year ago… One year ago today, Daytime United to End ALS! More than 30…
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Everything Everywhere All at Once
I saw my best friend alive for the last time 1 month ago yesterday. By 10:00 the next morning, she was gone, and our lives would be turned upside down even more so than they had been just 15 days before when we’d lost another close friend, Vicky, to metastatic breast cancer. Our friend group…
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Decades Dance Party Raffle and Silent Auction Spotlights
Below are some of the awesome raffles and silent auction items that you’ll find at our 4th annual Rise Against ALS Decades Dance Party on Saturday, September 30 at the Middleboro Elks! SILENT AUCTION ITEMS RAFFLE ITEMS Click here for ticket and sponsorship information.
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Through the Decades Dance Party
Our 4th annual Rise Against ALS Through the Decades Dance Party for ALS One will be held on Saturday, September 30th at 7:00 at the Middleboro Elks! Tickets are on sale now and can be purchased here. As always, 100% of the proceeds go directly to ALS One to support critical ALS research and help…
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Save the Date
Our 4th annual Rise Against ALS Through the Decades Dance Party for ALS One will be held on Saturday, September 30 at 7:00 PM at the Middleboro Elks! We have lots of amazing raffles and silent auction items, and DJ Mike Grondin will be back playing our favorite songs through the decades. And this year,…
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ALS ONE Event Roundup, Part 2
In March, we attended ALS ONE’s 8th Annual Snow Ball at the Marriott Quincy. This is one of my favorite nights of the year as we come together to celebrate the strides made in research and the tireless work of the entire ALS community. Last week we attended the annual Luau on the Links Golf…
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Everything Was Beautiful and Nothing Hurt
I used to keep a notebook next to my bed every night. I’d sometimes wake with great urgency, ripped from the peace that sleep had rendered, knowing that writing down whatever thought or phrase or quote or scene that was brewing was the only chance I had of falling back asleep. And so, without turning…
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A Little Seasonal Cheer
A huge thank you to our dear friend Nancy Lee Grahn, who stars as Alexis Davis on ABC’s General Hospital, for hosting the “A Little Seasonal Cheer for ALS Research & Care” event last night. Nancy was joined by her amazing GH costars and friends Genie Francis (Laura Webber Collins), Becky Herbst (Elizabeth Webber-Baldwin), Maura…
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I’ve Stepped off the Edge of the World
I got the call late Friday night that we had lost another ALS warrior. That’s four in 2 years. I am so utterly exhausted from getting these calls and attending these wakes. I’m sad and angry and frustrated and just done with all the loss. No matter how much progress is made, we’re losing too…
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Rise Against ALS! 