I had the honor and absolute privilege of officiating the wedding of my sassy, funny AF “baby” cousin Kerri and her fiancé, my amazing, hot-shit new cousin Gus, the night before Thanksgiving. I love these two more than words can say. The ceremony was a success, and we celebrated that night as well as the… Continue reading I Now Pronounce You…
Aaron and I went out with friends last night to see an 80s band at a great place in Marshfield called Station Eight. We’d discovered this bar for the first time after a group of us from ALS One went there after the Tucker Toss. I loved it instantly because it was incredibly accessible and… Continue reading Don’t Pet the Crip: She Bites
We had our third annual Rise Against ALS Decades Dance Party fundraiser on October 1st at the Middleboro Elks, and it was awesome! With over 100 people in attendance, we raised nearly $14,000 to support ALS ONE's mission. A huge thank you to all who came out and/or donated. A couple of weeks later we… Continue reading Rise Against ALS Decades Dance Fundraiser
We had a blast at the ALS ONE annual golf tournament in July and at the Falmouth Road Race in August. These pictures say it all. I truly love these people and am so inspired by their continued and relentless support of this cause. Also, they're ridiculously fun to hang out with! Seriously. It's insane… Continue reading ALS ONE Event Roundup
I thought my epic NKOTB moment had happened back in June 2019 when, while at their concert at the Gahhhden, Joey grabbed my hand for a lift into the audience during a heart-palpitation-inducing rendition of “Tonight.” That was epic, but it was, in fact, topped this past July when my cousins, Lauren and Kerri; my… Continue reading NKOTB Redux
Below are some of the amazing raffles that you'll find at our 3rd annual Rise Against ALS Decades Dance Party on Saturday, October 1 at the Middleboro Elks! Visit our Facebook Event Page for more information and to purchase tickets or make a donation, or simply use the QR Code to the left. Get your… Continue reading Rise Against ALS Decades Dance Party Raffle Spotlights
Our 3rd annual Through the Decades Dance Party for ALS One will be held on Saturday, October 1 at the Middleboro Elks! Tickets are on sale now and can be purchased here. We raised close to $15,000 at last year's event, and we hope to surpass that this year! As always, 100% of the proceeds… Continue reading Through the Decades Dance Party: A Fundraiser for ALS ONE
Kristen, the nurse from MGH’s ALS House Call program, came today for her trimonthly visit. All in all, it went pretty well. I don’t feel like I’ve had a lot of progression. My neck still causes me pain but we’re going to try a new brace that may help with that. My respiratory therapist had… Continue reading ALS House Call Visit
I'm really terrible at making time to post here. It's one of the many things I'm working on. It's been a hot minute since my last post, and that one was a bit, um, melancholy. I realized upon reflection that I was spiraling just a tad, and that it was time for a hard reset.… Continue reading Hard Reset
Breathe in… I’ve been plagued with a terrible sense of urgency lately. The past few days have found me in marathon writing sessions, desperate to get it all down, to get it all out. So here I am in my 40th hour of consciousness, drinking chilled pinot grigio and ruminating over this post that I’ve… Continue reading Ruminations on the Nature of Things
Rise Against ALS! 